Who does ME-CFS affect?

Myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS) is a long term condition that causes persistent fatigue (exhaustion) that doesn't go away with sleep or rest and affects everyday life. It most commonly affects the nervous and immune systems. Sometimes it is diagnosed as post viral fatigue syndrome (PVFS). ME-CFS affects everyone in different ways, but its impact is never insignificant. Even in its mildest for, ME-CFS changes he lives of everyone it affects and not just their health.
Find out more about chronic fatigue syndrome

ME awareness month

Action for M.E.’s 2018 ME-CFS awareness month campaign, This is M.E., focuses on the unique impact of ME-CFS. It aims to show that ME-CFS is different for everyone – and that everyone with ME-CFS matters, whatever your experience.

A lack of understanding about ME-CFS means children, families and adults affected by the condition can experience disbelief, and even discrimination, from friends, family, health and social care professionals, teachers, employers and colleagues.

Sonya Chowdhury, Chief Executive, Action for M.E, says: “Raising awareness and understanding of the unique impact of M.E. is vital in combating the ignorance, injustice and neglect experienced by people whose lives have been stolen by this horrible illness. M.E. is different for everyone – and everyone with M.E. matters, whatever their experience.”

Find out more, including how to get involved, on the Action for M.E. website.

Share your story

Throughout May, Action for M.E. are asking people with ME-CFS to share their stories and pictures. Action for M.E. will share these with people who make decisions about health, social care and other support services for adults and children with M.E. in Scotland, asking them to work with us to improve support available.

If you are affected by M.E., whether you have the condition yourself or are a carer, family member, friend or professional working with ME-CFS patients and would like to take part:

  • describe how ME-CFS affects you and/or your loved ones, and take a picture
  • share this picture on Facebook or Twitter using the #ThisisME hashtag
  • tag @actionforme so that they can share the images and stories too